A health information study for people with NF1-related brain tumors
Official title: Glioma Developmental and HyperActive Ras Tumor (DHART) Board
Status: Recruiting. It is looking for patients now. Talk to your care team about whether it fits you.
The trial team last updated this record on .
The short version
This study collects health information to learn more about NF1 brain tumors.
Read our full plain-language summary
What the trial team says
This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition. This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.
Key facts
- Registry number
- NCT05489783
- Conditions studied
- Glioma
Where it is running
This trial lists 7 sites.
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New Jersey
- Memorial Sloan Kettering Basking Ridge (All Protocol Activities) (Basking Ridge)
- Memorial Sloan Kettering Monmouth (All protocol activities) (Middletown)
- Memorial Sloan Kettering Bergen (All Protocol Activities) (Montvale)
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New York
- Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities) (Commack)
- Memorial Sloan Kettering West Harrison (All Protocol Activities) (Harrison)
- Memorial Sloan Kettering Cancer Center (All Protocol Activities) (New York)
- Memorial Sloan Kettering Nassau (All Protocol Activities) (Rockville Centre)
How to use this
Talk to your care team first. They know your history and can tell you whether this trial is worth your time.
Joining a trial is always your choice. A trial is a test, not a proven treatment. Being in one is not a promise that it will help you.
This page is built from the trial's listing on ClinicalTrials.gov, a service of the U.S. National Library of Medicine. That listing is the authority, and it may have changed since we last read it. We do not run this trial and we cannot enroll you in it.