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A health information study for people with NF1-related brain tumors

Original title: Glioma Developmental and HyperActive Ras Tumor (DHART) Board

How far along is this research?

This is a trial that is enrolling or has been updated. It is not a finding yet.

No phase was given for this study, and it collects information rather than testing a treatment.

Status: Recruiting. It is looking for patients now. Talk to your care team about whether it fits you.

The trial team last updated this record on . Always check the trial page for the latest.

The short version

This study collects health information to learn more about NF1 brain tumors.

Who this trial is for. This study is for people who have a brain tumor linked to neurofibromatosis type 1. It gathers medical records, scan results, and surveys to build a registry, which is a collection of health information about one condition.

Where it stands. This study has not reported results. Researchers are still gathering information about how this tumor is found, how it is treated, and how treatment affects daily life over time. The answers are not in yet.

What this means, and what it doesn't

What it could mean: Someone with an NF1-related brain tumor could ask their care team about this study. What researchers learn here may shape how doctors find, test, and treat this tumor for future patients.

What it doesn't mean: This does not mean a new treatment is here. A study is a test, not proven care. Taking part is not a promise that anything will help you. It is not a promise of a cure.

Source: ClinicalTrials.gov, August 31, 2026 · Read the original

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