A registry gathering samples and health records from children and young adults with rare brain tumors
Official title: International Rare Brain Tumor Registry
Status: Recruiting. It is looking for patients now. Talk to your care team about whether it fits you.
The trial team last updated this record on .
The short version
This study collects tissue samples and health information to help doctors learn more about rare brain tumors.
Read our full plain-language summary
What the trial team says
The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
Key facts
- Registry number
- NCT05697874
- Conditions studied
- Astroblastoma, BCOR ITD Sarcoma, CNS Sarcoma, Unclassified Tumor, Malignant
Where it is running
This trial lists 13 sites.
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Bogota D.C.
- HOMI - Fundación Hospital de la Misericordia (Bogotá)
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California
- Children's Hospital Los Angeles (Los Angeles)
- University of California San Francisco (San Francisco)
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Colombia
- Clinica Del Country (Bogotá)
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District of Columbia
- Children's National Hospital (Washington D.C.)
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Illinois
- Ann & Robert H. Lurie Children's Hospital of Chicago (Chicago)
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Israel
- Rambam Health Care Campus (Haifa)
- Schneider Children's Medical Center- CLALIT Health Services (Petah Tikva)
- Dana-Dwek Children's Hospital- Tel Aviv Medical Center (Tel Aviv)
- The Sheba Medical Center (Tel Litwinsky)
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Ohio
- Akron Children's Hospital (Akron)
- Cincinnati Children's Hospital Medical Center (Cincinnati)
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São Paulo
- TUCCA - Santa Marcelina (São Paulo)
How to use this
Talk to your care team first. They know your history and can tell you whether this trial is worth your time.
Joining a trial is always your choice. A trial is a test, not a proven treatment. Being in one is not a promise that it will help you.
This page is built from the trial's listing on ClinicalTrials.gov, a service of the U.S. National Library of Medicine. That listing is the authority, and it may have changed since we last read it. We do not run this trial and we cannot enroll you in it.